Celine Dion, 54, gave a long-awaited health update on Instagram.
In the new emotional video, she revealed she has been diagnosed with
a rare neurological disorder: Stiff-Person Syndrome, – Search (bing.com)
The disorder is responsible for the muscle spasms she has cited as the cause of her previous tour postponements. In her announcement, the singer postponed the Courage tour for the third time. Celine Dion gave a long-awaited health update: on social media.
The disorder is responsible for the muscle spasms she has cited as the cause of
her previous tour postponements. In her announcement, the singer postponed
the Courage tour for the third time.
Celine Dion fans have waited over a year now for the “My Heart Will Go On” singer to continue her Courage tour, which she has postponed three times over health concerns. Past statements said the star was dealing with unexplained muscle spasms, and in a new emotional video, Dion gave her latest health update, revealing that those symptoms have led to a diagnosis: she has a rare neurological disorder called Stiff-Person Syndrome (SPS).
CELINE DION RESCHEDULES SPRING 2023… – Brian Fernandez Yano – Bing video
The 54-year-old sat down in front of the camera for Instagram, making a rare social media appearance for the heartbreaking announcement. “Hello everyone. I’m sorry it’s taking me so long to reach out to you,” she began. “As you know, I’ve always been an open book; and
I wasn’t ready to say anything before. But I’m ready now.”
She continued: “Recently I have been diagnosed with a very rare neurological disorder called Stiff-Person Syndrome, which affects something like one in a million people.
While we’re still learning about this rare condition, we now know this is what’s been causing all of the spasms that I’ve been having.
Unfortunately, the spasms affect every aspect of my daily life, sometimes causing difficulties when I walk and not allowing me to use my vocal cords to sing the way
I’m used to.”
Dion added that she’s tirelessly working with doctors and sports medicine professionals to regain enough strength to perform, but until then, she has to postpone the Courage tour once again, canceling summer 2023 shows and moving spring 2023 shows to 2024.
“I have to admit it’s been a struggle,” Dion continued, tearing up.
“All I know is singing, it’s what I’ve done all my life and it’s what I love to do the most …
And I miss you so much. I miss seeing all of you, being on the stage—performing for you.
I always give 100% when I do my shows, but my condition is not allowing me to give you that right now.”
According to the National Institute of Neurological Disorders and Stroke,
SPS has features of an autoimmune disease and is characterized by fluctuating muscle rigidity in the trunk and limbs, as well as a heightened sensitivity to stimuli such as noise, touch, and emotional distress, which can trigger muscle spasms. It’s often misdiagnosed as Parkinson’s disease, multiple sclerosis, or fibromyalgia. Researchers are still trying to understand the disorder, and currently there is no cure.
At the end of the video, Dion thanked fans for their patience, love, and support.
“I love you guys so much,” she said. “I really hope I can see you again real soon.”
Fans and followers were devastated by the news, offering their love and support.
“So much love to you! Take the time you need.
,” one person commented. “You are so brave! We love you, thank you for opening up to us,”
another added. “I send you my love and respect to endure this tragedy, you are strong, indestructible.
YOU CAN DO IT
,” someone else wrote.So, although it will be a while before fans can expect to see Dion on stage,
there is a silver lining. In November, she announced that she’s making her film
acting debut in Love Again, a romantic comedy set to release in theaters.
Celine Dion – Taking Chances World Tour the Concert (2010)
https://ok.ru/video/1557138091 1:42.11
In the meantime, we extend all of our well wishes to the star!
Pop star Céline Dion described her challenges with the rare neurological disorder stiff-person syndrome on Thursday. Dr. Chris Hahn, clinical assistant professor of neurology
at the University of Calgary, explains how the illness affects people and the treatments needed.
kfhudson51
Celine- I too was diagnosed with Stiff Person’s Syndrome (on Thursday, 12/01/2022)
by Mayo Clinic. Please understand that I would not wish this on anyone in the world,
your announcement made me feel like I was not alone. We are 2 in a million together.
My heart breaks for you, as I know how much you love to sing. My hope is that you are getting the best treatment possible, and that you will be able to sing again.
This awful illness is said to affect 1 in a million.
Together we are 2 in a million. Thoughts, prayers and love sent your way.
@gommteri I think they already are. I looked up IVIG on the internet,
as I was scared out of my mind- thinking my insurance wasn’t going to help cover my treatment. I found a site where you could put your name and questions about treatment. Just prior to this, my neurologist’s nurse told me that my insurance would not cover treatment. I was devastated and thought I would die a painful death.
I found Optum Infusions. I filled out a questionnaire, they called me the next day and received the ok from my insurance in a week! I was shocked! I did have to pay $3,000,
insurance is paying the rest. After 5 infusions, and Baclofen & Valium- I am seeing a big difference. I was diagnosed exactly one week before Celine made her announcement.
Not sure if that made any difference or not, but I know it didn’t hurt.
Many states are making SPS an automatic disability condition. That, in itself, will help many people. I am sorry that you are having such a hard time with this. I believe there are thousands of us who have been misdiagnosed or undiagnosed! People are going to start to take notice of Stiff Person’s Syndrome, and the medical field will find more answers.
Just know that you are not alone in this.
There are so many of us fighting the same fight. Take care
gommteri
@kfhudson51 Is the infusion you’re receiving Gamunex?
dory.florea
The main culprit of this disease is high insulin levels, we are all pre-diabetic towards
old age and these high insulin levels destroy nerve cells, switch to ketogenic diet with maximum 25g carbohydrates and intermittent fasting. 88% of Americans are prediabetic. 90% of diseases are caused by this high level of insulin acquired over decades, because we are not built to consume carbohydrates. Agriculture and the abundance of produce shortens our lives.
We are adapted to endure hunger, not to gorge ourselves on food.
Hunger is the best remedy for autoimmune diseases, cancer, diabetes, cardiovascular and neurodegenerative diseases. The neurotrophic factor produced in this state leads to the triggering of stem cells in creating new neurons.
Try to gradually fast intermittently for 3 days at first, then after 2 months 7 days, and then reach 21 days with only water. A supply of B vitamin complex from natural sources (yeast), vit B12 (methylcobalamin not cyanocobalamin), omega 3 from cod liver oil, large doses of vitamin D3 with K2 (30000 IU daily). And an 80% carnivore ketogenic diet.
Avoid plants with high levels of lectins. Free-range meat and eggs from free-range birds. The meat should be fat. And in a maximum of one year you will see the difference.
Try to do a HOMA-IR analysis not glycated hemoglobin (Hb_A1c) or blood sugar,
they are irrelevant. You will see how high your insulin level is when you are not eating.
Try it, you have nothing to lose.
annatoledanobook
Love and prayers to you Celine..
Thank you for everything you give and for everythingyou are. I have so many beautiful memories thanks to you and your voice and music.
All of your fantastic shows
️ I pray for your recovery Love always
@celinedion you will always be my nr.1 sazan Even in your weakest moments you are a pillar of strength for so many.
What a pure soul if I ever did see one
God’s presence is all of you. Praying in the name of Jesus right now that you will be healed and completely restored. There’s an army of people lifting you up and praying for you! You are not alone in this.
We love you and God bless you!!!
stacifrenchcosmicchannel
Get tested for Lyme disease and co-infections. The Igenex lab is the best test.
Then, find a Lyme Literate naturopath.
Stiff-person syndrome explained after Céline Dion reveals diagnosis.
‘I want to give Celine Dion hope’: Neurologist on stiff-person syndrome.
Stiff Person Syndrome and Cannabis: Can it Help?
By TMCC Admin Team
January 24, 2022
Shows, Health and Wellness, Medical
A New York Mother’s Fight For Her Daughter. – YouTube
Can Cannabis Help Stiff Person Syndrome?
Stiff Person Syndrome and Cannabis
Could cannabis help stop the debilitating muscle spasms of Stiff Person Syndrome?
Jennifer Shanley of Rochester, New York, is on a journey to pinpoint the perfect
cannabis strains to help her 22-year-old daughter Madeline.
In September 2018, Madeline was struck with a sudden and mysterious illness
that stole her life away abruptly. Once a college honors student at Nazareth College,
Madeline found herself 100% bed-bound and in constant and excruciating muscle spasms.
After years of searching and financial hardships, a two-month stay at John Hopkins Hospital in Baltimore finally led to the diagnosis of Stiff-Person Syndrome or SPS,
a rare one-in-a-million autoimmune and neurological muscular disorder.
This is a painful story to share, but it’s also a story of Hope for Madeline and her family.
You don’t want to miss this episode!
Highlights from the conversation include:
Why are they looking to cannabis for relief
What SPS is and how it affects Madeline
How the New York medical cannabis program failed Madeline
What home cultivation means for patients like Madeline
How could you possibly help Madeline
A woman sits on a couch rubbing her neck to ease symptoms of stiff person syndrome.
Do you have any information on genetics or cannabinoids that have helped with severe muscle spasms, neurological disorders, and or Stiff-Person Syndrome?
The Shanley’s have asked us to request from our community
any information or even medical doctors to be sent to them.
You may email Jennifer Shanely at thatjenshanely@gmail.com.
15 Natural Treatment Options for Back Spasms (simplyhealth.today).
Cannabis derivatives therapy for a seronegative stiff-person syndrome: a case report
M I Vicente-Valor 1, P Garcia-Llopis, L Mejia Andujar, G Antonino de la Camara, N García del Busto, M J Lopez Tinoco, B Quintana Vergara, C Peiro Vilaplana, J A Dominguez Moran, A Sánchez Alcaraz
Affiliations expand
PMID: 22726074
DOI: 10.1111/j.1365-2710.2012.01365.x
Abstract
What is known and objective: Stiff-person syndrome (SPS) is an uncommon and disabling disorder characterized by progressive rigidity and episodic painful spasms involving axial and limb musculature. SPS treatment is mostly based on benzodiazepines, baclofen, immunosuppressants and intravenous immunoglobulin. Cannabis derivatives [tetrahydrocannabinol (THC) and cannabidiol (CBD)] are available as an oromucosal spray (Sativex(®)), indicated as add-on treatment, for symptom improvement in patients with moderate to severe spasticity because of multiple sclerosis (MS). Our objective is to report a case of seronegative SPS successfully treated with THC-CBD oromucosal spray.
Case summary: We report a case of a 40-year-old man presenting with progressive muscle stiffness and intermittent spasms for 6-years. The diagnosis of stiff-person syndrome was based on the clinical features and neuroelectro physiologic findings of continuous motor unit activity. Glutamic acid decarboxylase autoantibodies was absent in our patient, in both serum and cerebrospinal fluid (CSF). Cannabis derivatives oromucosal spray was introduced after a series of unsatisfactory traditional medical treatments.
After 14 months treated with THC-CBD oromucosal spray, improvement was verified in the eight dimensions of the scale of SF-36 quality of life questionnaire.
What is new and conclusion: Clinical experience with cannabis derivatives in patients with multiple sclerosis is accumulating steadily, but there is no current literature about its efficacy for SPS. Because MS and SPS share some neurological symptoms such as spasticity and rigidity, it is thought that THC-CBC can be an option for SPS patient. Our case report suggests that THC-CBD oromucosal spray is an alternative treatment for patients with refractory SPS, and further validation is appropriate. © 2012 Blackwell Publishing Ltd.
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Publication types
Cannabis derivatives therapy for a seronegative stiff-person syndrome: a case report – PubMed (nih.gov)
THC and CBD oromucosal spray (Sativex®) – Search (bing.com)
THC and CBD oromucosal spray (Sativex®) – Bing images