尋找治療並尋找生活 Looking for a cure and finding a Life !!!
Crazy Sexy Cancer – Kris Carr – She was given the diagnosis in 2003 with the stated disease stated disease, epithelioid hemangioendotheliomaand rose to prominence with a 2007 documentary called “Crazy Sexy Cancer.” She subsequently wrote two successful books— “Crazy Sexy Cancer Tips” and “Crazy Sexy Cancer Survivor” — about her peppy, pop-spiritual approach to her disease, as she soon became what she sometimes describes as a “cancerlebrity” or, at other times, a “cancer cowgirl.” http://new-play.tudou.com/v/597874631.html?
As its name implies, epithelioid hemangioendothelioma is an angiocentric vascular tumor with metastatic potential… These lesions may appear as a solitary, slightly painful mass in either superficial or deep soft tissue. Metastases to lung, regional lymph nodes, liver, and bone are reported. Another pattern is that of a diffuse bronchoalveolar infiltrate or multiple small pulmonary nodules.
This entity has also been called IBVAT…can also arise in the liver, often presenting as an incidental finding or as part of a workup for mild elevation of liver enzymes or vague abdominal pain. Multiple liver nodules are the rule. Although these lesions can metastasize, they usually run an indolent course. Liver transplantation has been performed…
This sounds scary, sure, but the bottom line is that this tumor falls into unchartered oncology territory because they’re so rare. As reported in the Times piece there are only 40-80 cases per year in the U.S. A reference in the textbook, above, leads to a 1989 report in the American Journal of Surgical Pathology. In that study of 10 cases, the authors describe an unpredictable course for the disease.
As told by Mireille Silcoff in the magazine, EHE comes roughly in two forms: one’s aggressive and one’s not. So what the oncologist at Dana Farber suggested – that she go about her life, and “let the cancer make the first move” – was a reasonable strategy, one that allowed them (patient and doctor) to find out, over time, what would be the nature of her particular EHE.
Carr lucked out: She has the “good EHE” So far, at least, she’s enjoyed a productive, enterprising life with cancer.
Her blog postings are being syndicated, she has pending sponsorship contracts, her weekend workshops are thriving and she has provided one-on-one coaching sessions on Skype ($250 for 90 minutes). She also just bought a farm — 16 acres complete with two houses, a barn, a meadow and a forest…
Besides, she hasn’t received chemo, had limb-removing cancer surgery, undergone early menopause…She looks fabulous! And with that kind of cancer, maybe so would you.
So I’ve learned from Kris Carr: For one thing, I believe that her cancer is the good type not the bad type. With EH Kris’s story could go on for years.
Second, she’s a smart business woman, who’s turned her life around upon a cancer diagnosis.
Third, And I’m taking careful notes. Let’s leave it go with that, for now. The danger is that readers and customers/followers may believe that her current well-being is due to her lifestyle choices. And that some people with the malignant form of EHE, whose emails she may not read, struggle with feelings of inadequacy and defeat.
Much like Kris Carr: Mireille Silcoff knows a thing or two about:
Changing Your Life to Change Your Health.
Back in 2004, Mireille Silcoff was a sought-after journalist. . . . living a peripatetic life as founding editor of Guilt & Pleasure Quarterly, a magazine of new Jewish writing and ideas; an author of three books about drug and youth culture; a lead columnist with the National Post; and a frequent contributor to the New York Times Magazine.
Silcoff spoke to the The CJN from her home in Montreal about her book, a collection of eight stories, Chez l’arabe, launched last August by House of Anansi Press.
Journalist Mireille Silcoff began writing the nine Montreal-based stories in her debut collection, Chez l’arabe, during the years she was left “deeply bedridden” and immobile with an alarming neurological condition that caused her spinal fluid to leak uncontrollably.
Like a prisoner determinedly chipping her way out of her cell with an espresso spoon, Silcoff unleashed the world that had evolved in her head (her condition meant that her brain was often unsuspended) through daily, 15-minute writing sessions.
“I was living in Toronto doing most of my work in New York, and my fiancé, to who I am now married, was living in Montreal – a crazy existence. I was on an airplane all the time,” recalled Silcoff.
Mireille Silcoff was forced to give up her career when she was diagnosed with a rare genetic chronic condition: spontaneous cerebrospinal fluid leak.
“I went through this harrowing process. I had to abandon everything as I became more and more ill. I stopped writing. I became a very sick woman at the age of 31,” Silcoff, now 42, said. Her spinal fluid leaked, and it couldn’t function as a natural cushion for her brain. Her brain sunk into her skull leaving her in agony.
Confined to a bed, it took her a slow span of over half a decade to get better. Silcoff couldn’t hear, speak, or move for many weeks. “I was completely like a husk,” she said. It was during that period that she began writing. She started off with poetry, moved on to writing letters, then shifted to fiction. She wrote the title story in 10-15 minute bursts everyday.
“Chez L’arabe is a story about two people from opposing sides who find themselves together in a foxhole, forging a friendship in the weirdest way one can be forged,” Silcoff said.
Surprisingly, Silcoff realized fiction was something she could do.
“I never entertained the notion of being a fiction writer before. I was very happy in the world of non-fiction. I continued writing the other stories, but it was a much more laborious process. I knew that first story would lead to a book and eventually – six years later – I did have a book,” said Silcoff,.
Silcoff grew up in Jewish Montreal and lives there today; a place that provides a rich setting, drawing moments of familiarity to its readers. “There could be a nostalgic love quality to my writing,” she said.
The theme which holds the stories together is threads of other people’s lives that have been upended – through strained relations, marital dissatisfaction, professional limbo, and illness. Silcoff’s stories are detailed and infused with humor and touching emotional insights into the human condition.
Half of Chez L’arabe was written lying in bed writing in notebooks. Silcoff then graduated to using a laptop on a specially designed easel that she could use while in bed.
“When I was able to sit up, I would write a bit everyday at a desk. It was a very incremental process,” she said. “I am still going through it. I will always have this syndrome, it’s just a lot better than it was but it’s something I will live with for the rest of my life.
“I think in a funny way the book is a record of my healing. When one reads the book, it can be seen that there is a trajectory of a certain character in four linked stories, and, as these stories progress, in each story she is getting better. That was really happening to me as well,” she explained.
Where does autobiography end and fiction begin?
https://vimeo.com/121910508
Healing from The Inside Out!!!
With…
T.Colin Campbell, Ph.D.
The China Study
Brian Clement, Ph.D.
Hippocrates Health Institute
Mirea Ellis
The Kushi Institute
Charllotte Gerson
The Gerson Institute
Matt Lederman, M.D.
Exsalus Health & Wellness Center
Thomas Lodi, M.D.
An Oasis of Healing
John A. McDougall M.D.
Dr. McDougall’s Health & Medical Center
https://www.youtube.com/watch?v=nd82ktv7oBY
10 Documentaries that Will Make You Rethink Everything You Know About Food and Health
https://firstwefeast.com/eat/best-food-documentaries-that-you-should-watch-right-now/
Top 10 cancer documentaries: http://foodmatters.tv/content/top-10-cancer-documentaries-of-all-time
Food Matters – http://www.youtube.com/watch?v=r4DOQ6Xhqss
Tuesday- the filmmakers behind Food Matters -and hungry for change – 2 original ground breaking documentaries that exposed the sickness inside the food industry and uncovered simple secrets to natural health and wellness – https://vimeo.com/foodmatters https://vimeo.com/88820789
Kitchen Table Wisdom – Stories that heal – Rachel Naomi Remen
https://www.youtube.com/watch?v=l95DK-DLbO4
Healing the Gerson Way – Charlotte Gerson and Beata Bishop
Dying to be me – Anita Moorjani
https://www.youtube.com/watch?v=l95DK-DLbO4
The Anatomy of Hope – Jerome Groopman
http://www.cc.com/video-clips/nby1fe/the-colbert-report-jerome-groopman
Drawn from traditional Buddhist wisdom, Pema Chödrön’s When Things Fall Apart reveals her radical and compassionate advice for what to do when things fall apart in our lives. There is only one approach to suffering that is of lasting benefit, Pema teaches, and that approach involves moving toward painful situations with friendliness and curiosity, relaxing into the essential groundlessness of our entire situation. It is there, in the midst of chaos, that we can discover indestructible truth and love. https://www.youtube.com/watch?v=zPxGOUeGCf4
∆ CUT•POISON•BURN CANCER – https://vimeo.com/98075164
What the Bleep do we know – https://vimeo.com/35423497
Genetic roulette – https://vimeo.com/90061444
Vitamin D Prevents Cancer – http://www.youtube.com/watch?v=TQ-qekFoi-o
Tuesdays with Morrie – Mitch Albom – https://www.youtube.com/watch?v=E463tZdAGn4