Marlana VanHoose (Born June 25, 1995) in Columbus, Ohio and was the first of two children born to David VanHoose, a correctional officer in the federal prison system and Teresa (née Blair) VanHoose, a school teacher.
VanHoose was born with Cytomegalovirus (CMV) which hindered the development of her optic nerve rendering her blind at birth and a diagnosis that she would not live past one year of age. After her first year her parents were told that the virus was in remission. At the age of two VanHoose was diagnosed with a mild case of cerebral palsy.
But God knew better, He had special plans for Marlana. After Marlana turned a year old her body healed from the virus and that is when it all began.
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Marlana was humming “Jesus loves me” before she talked and by the time she was two years old she started playing the piano. She has sung all over the United States at various events & churches. Marlana is a member of the Artist Music Guild where she was the 2015 recipient for Youth Artist of the Year. Marlana also was the 2012 recipient for New Artist of the Year and Young Artist of the Year.
VanHoose recorded her first major project in 2013 entitled, “Do Right.” The project was written and produced for her by fellow Christian recording artist David L Cook and Elddy Trevino and released under DLC Records. Cook took over VanHoose’ management in 2012 and launched her onto a national level. . . . She also was a 2013, 2014 & 2016 nominee for Artist of the Year. Marlana was the 2015 recipient for Youth Artist of the Year. https://www.cbsnews.com/news/teens-big-voice-shatters-obstacles/
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Marlana sung the National Anthem at a University of Kentucky Women’s Basketball game in 2012. This was placed on YouTube and the video went viral. Since then, CBS evening news aired her story, she has sung at three NASCAR Sprint Cup Series Races, NCAA women’s basketball tournaments and at several NBA basketball games, as well as many other events & churches across the USA.
She also has sung for the 2015 NBA Playoffs including the 2015 NBA Finals, Game 6. ESPN-E-60 aired “Loud and Proud” a story about Marlana and the UK women’s basketball. Marlana appeared on Atlanta Live Gospel Show and Babbie’s House, a gospel show in Atlanta, GA.
Which included performing for the 2016 Republican National Convention and the 2017 Republican Inauguration Concert Series. VanHoose sang for the presidential concerts at the Lincoln Memorial on the Mall as well as being the featured artist for the Day of Prayer at the National Cathedral on January 22, 2017. VanHoose was the only performer of the day given a standing ovation led by Melania Trump after being moved to tears by her rendition of the classic gospel hymn, “How Great Thou Art.”.[
In 2016 VanHoose performed at Carnegie Hall as a premier guest. She was the official anthem singer for the 2016 Republican National Convention and appeared on Good Morning America the next morning from the floor of the convention center.
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In December 2016 VanHoose opened the New York Rangers game at Madison Square Garden to an audience of over twenty thousand in attendance. She also has appeared on various other shows such as Inside Edition & Entertainment Tonight. Marlana also had the honor of singing at Carnegie Hall in NY City & Madison Square Garden for the NY Rangers.
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Marlana has been commissioned a Kentucky Colonel. She sings regularly with Best Buddies & United by Music North America organizations. Marlana performed at the 2016 Republican National Convention & VanHoose sang for the presidential concerts at the Lincoln Memorial on the Mall as well as being the featured artist for the Day of Prayer at the National Cathedral on January 22, 2017.
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VanHoose was the only performer of the day given a standing ovation led by Melania Trump after being moved to tears by her rendition of the classic gospel hymn, “How Great Thou Art.”.[Marlana met President Trump at a 2017 Rally in Louisville Ky. The first thing she told him was that, “Jesus Christ & God’s word will be the only one that will make America Great Again with your help.”
Marlana has invited Jesus into her heart and has been baptized. She loves God very much and says she has no need to see here on earth. She knows that when she gets to Heaven, Jesus will be the first face she’ll see. https://www.littlemarlana.com/videos.html
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Like wise meeting Dar Setters was amazing in itself:
I started communication with Dar on 07/17/2015 8:41pm
Living just north of Indy she always felt close to me. Dar also stated she had all my surgeries at Indiana University Hospital. Luckily they still had their proton Center open in Bloomington at the time I went. IN Late 2013. They also never ever use Chemo as a treatment (ever) for chondrosarcoma .
It will not respond in any way to chemo. They only use proton if you have skull based but they don’t use proton or any other form of radiation on any other body part.
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The only alternative is surgery/amputation. They try to save the limb when possible but it’s hard. There are a lot of people missing limbs on my CS site. I sometimes feel fortunate but then sometimes it is hard because I also lost my sense of taste & I cant speak without this prosthetic jaw & palate. I cant eat well & my mouth closed up from radiation & I’m not able to yet get the final prosthesis made. I have one that is pretty ill fitting so I’ve been prone to chronic infections.
I’ve been on so many antibiotics I got C. Diff & it took me 3 months to get over that & my stomach has never been right sense then. I lost 90% of my hearing in one ear & 60 in the other & just lots of things… Also trigeminal nerve pain from cut nerves but yet no feeling in half my face…so its all strange. Anyway I am alive & I want to stay that way! I really want to fight this!
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I’ve already started a few things I learned on your site with certain vitamins. I did not even know you were also a member of the Head & Neck Cancer Survivor Group. I joined this group on suggestion from Kathryn Epler. I joined the H&N cancer group because hardly anybody in my Chondrosarcoma support group has Skull based CS so they cant offer. https://www.cdc.gov/hai/ organisms/cdiff/cdiff-patient. html
Also just to remind you each Sarcoma is very different & treatment for each kind is different. For instance most of the other Sarcomas they will use chemo on but not CS.
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So just because they are rare they often lump the group all together under Sarcoma but you really need to look under each kind separate. Each one is different. As far as natural treatments maybe not as much… But the way the regular medical world treats them it is all different. What is your story? When I saw you were a survivor I was wondering. What did you do?
Did you cure yourself with a natural treatment? The Dolly that used the Gerson Diet was interesting. I wondered why she didn’t stay on the diet through out her life after she had the cancer when she was 11.
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Maybe it would not have returned. I wonder if she will stay on it for good now.
Ken my Chondrosarcoma group is a closed group & the lady that heads it up only allows CS patients. She does not allow even nutrition or healing people or anybody else on. Not that she is against it but I guess we just need to go find those groups ourselves to join. She is very strict in only allowing CS only in our group. Other types of Sarcoma is not in our group either. Its very confined to just CS.
I am actually pretty sick right now with some problems but after she gets back from a trip on 8/2 I hope I feel better by then too & we plan to do a phone consult to see if we will be a good fit. If so my husband will be happy to bring me down to see her. He’s a good care giver & always here for me. I have a lot if issues so i really would like a life coach anyway. With the head cancers you tend to get these bacterial infections & if you check it out so many die from them. Once they get in the bone or enter the blood stream they cant do anything.
I have such a hard time with them. I’ve had them surgically removed but keeping them at bay … I’ve tried all these natural things too that don’t work so I need help finding the right thing. I use a colloidal silver rinse, Essential oils, coconut oil, a mixture from a compound pharmacy, different vitamins. I also keep getting C. Diff, however my Dr. is doing a fecal transplant now so that might stop that. I just have trouble building the immune system & stopping infections.
I’m blind in the left eye right now and it’s pretty aggressive. I’m just praying this works. I’m at a loss. . . . I don’t know what else to do. Mine has been so aggressive and in the head so close to the brain so it just needs to work fast … It’s just so hard to kill Sarcoma sometimes but it’s a chance.
My own oncologist said he can’t believe Dr. Van Tine has time for all he does.
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He’s involved in all these clinical trials, has his own lab, is an oncologist too and takes time to be on our Sarcoma support group & responds to people that he sees struggling as he told me. If you look him up in you tube he heads up many of the group discussions as a leader in Sarcoma discussions. He was also awarded several grants by the Sarcoma alliance for studies.
He’s very compassionate. I mean he seriously called my Doctor to get me set up on this immunotherapy before it was out for public announcement. My insurance is covering it until December… which Dr. Van Tine said is shocking… That they are even paying anything. It’s like $150,000 a year. I think I need to apply for the funding now.
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If I do I might have to have the treatments in St Louis then. Not sure. Dr. Van Tine knows Dr. Rushing and was really big on letting me do my treatments at home. Hanging in… a little worried about how my scan turns out on Thursday. My Ins co approved the Pembro for me until 11/28 so this scan needs to show improvement so my Doctor can ask for an extension.
https://www.curesarcoma.org/ wp-content/uploads/SARC_News- Release_SARC028-Immunotherapy_ 21JUL2016.pdf
I am but a little concerned & hope they understand this is slow moving and also it typically swells the tumor before it calcifies it. I have high grade chondrosarcoma though so a little different type of Sarcoma. I have really bad headaches but my tumor is also in my head & it’s made me blind in my left eye now so it’s pressing on a lot of nerves and such. It’s completely destroyed my optic nerve so I can’t get my sight back in the left eye.
Pembro can have headaches as a side effect but not sure if mines from the drug or tumor then. I also started menstrual bleeding .. like everyday and I’m 64 & was over all that stuff years ago. My Doctor is still researching more info on this but I guess it happens with some immunotherapy and even chemo drugs. I feel fatigued but that’s not unusual .. I also don’t have much appetite but I had that before too. I’ve never used any of the cannabis for anything yet. It’s not legal in Indiana although if I thought it would help I wouldn’t mind vaping it. I haven’t found anybody on my Chondrosarcoma site that it’s helped other than with some pain. Besides if I started using that I’m worried I wouldn’t really know what was working to shrink the tumor. It’s really hard to kill Sarcoma’s
I can deal with my pain & I have a good massage therapist & then another one I see that uses healing touch & some other weird techniques that honestly shouldn’t work but somehow do. I was doing Pembrolizumab remember? I was going to tell you how I was doing. I guess not well. I personally don’t feel I was on it long enough. I don’t know. They want to add a new drug and it has too many side effects I have studied it and I won’t do it. In one phase II clinical trial conducted on 19 non-small cell lung cancer patients, a p53 therapy called Advexin was given in combination with radiation therapy. After three months, 63 percent of patients had no detectable signs of cancer. This is four times the response expected from radiation treatment alone??
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I’m reading this book right now recommend by Sarcoma chat group people called curing cancer with immunotherapy: how it happened a century ago. It’s a true story about Rene Chee …. who has Synovial Sarcoma Skull based cancer & her experience with Coleys and other therapy. She has a PhD .. medical biologist and Doctor from University of Ca and Stanford. Can barely put it down What a journey. Not sure I could ever afford all the stuff she’s done to stay alive. This book is amazing!!! http://www.curingcancerbook. com/how-i-survived-cancer- immunotherapy
So far in the book she’s done 117 Coleys injections Part right into the tumor site but that is not possible with me. Her and her husband do them their self and I’m not sure I could do all that. I’m not sure I could even afford all these treatments and she’s still fighting for survival so far in the book… after 4 years Im like half way through it. I mean this is her life really. Ken you need to read this book. https://www.amazon.com/Curing- Cancer-Immunotherapy-happened- attempted-ebook/dp/B01IB2D2WQ/ ref=redir_mobile_desktop?_ encoding=UTF8&qid=&ref_=tmm_ kin_title_0&sr=
Yes I was on Keytruda.
They want to add yervoy I’m hesitant She knows the Docs that created yervoy .. the book author. Lots of bad side effects That’s why she stuck with Coley’s She went to Germany to get therapies we just have in drug trials now.. ugh We are so far behind. This book is really amazing. I’ve learned so much. She talks about everything in here Conventional and not conventional.
Yervoy is very similar to Coley’s but Coley’s doesn’t have the side effects. I think she’s had over 200 treatments of Coleys. She didn’t even have any known cancer cells when she started and none ever got into the bone. I think different things work for different cancers but High grade Sarcomas are hard. My Sarcoma Oncologist was so frustrated one day .. he was telling me they could grow these tumors the size of footballs and kill them in 36 hours with all these therapies but we can’t kill a marble sized sarcoma.
I’m reading this book right now recommend by Sarcoma chat group people called curing cancer with immunotherapy: how it happened a century ago & it’s a true story about Rene Chee. Who had Synovial Sarcoma Skull based cancer & her experience with Coley’s and other therapy. She has a PhD .. medical biologist and Doctor from University of Ca and Stanford. Can barely put it down What a journey. Not sure I could ever afford all the stuff she’s done to stay alive.
This book is amazing ——-> https://www.amazon.com/Curing- Cancer-Immunotherapy-happened- attempted-ebook/dp/B01IB2D2WQ/ ref=redir_mobile_desktop?_ encoding=UTF8&qid=&ref_=tmm_ kin_title_0&sr=
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