My Neuroborreliosis Story & Advice

Fairy tale Estonian summer on the island!

Viive-Kai Rebane

 I was born in Tallinn in 1989. I started basketball training in the third grade and eventually rose to the Estonian youth and adult basketball teams, became a multiple Estonian champion and was chosen as the best player of the Estonian championship league season. 

After graduating from Audentes Sports School with a gold medal in 2008, I went to America for four years at Binghamton University, where I played basketball in the NCAA Division 1 and received a bachelor’s degree in psychology, graduating cum laude in 2012 and being among the best basketball players in my conference.

After university, I returned to Europe and played two seasons of professional basketball – first in Bulgaria and later in Italy. While studying in America, I was diagnosed with Lyme disease, which unfortunately turned into chronic neuroborreliosis, ended my sports career and led to a 12-year fight for my health. 

After giving up my professional career, I worked as a beekeeper for my father at Lemmena Beekeeping Farm, moved to Hiiumaa and started developing myself in photography. Inspired by the nature of Hiiumaa, I bought my first camera, wanting to share its beauty with the whole world.

That’s where my Youtube channel started, where I traveled around Hiiumaa in my videos, accompanied by my beloved dog Jack. I rescued Jack from a shelter as a puppy and he is my best friend. Over time, beekeeping became my hobby and photography became my full-time job –  I founded my own company in 2021 and now I am diving deeper and deeper into the wonderful world of photography and videography.

 I got my basic knowledge of photography from a black and white photography course at university, where I developed my first photos in the darkroom and captured the New York landscape. This was followed by a digital photography course, after which I knew that photography had a special place in my heart.

However, it was another 10 years before I bought my first camera and started to delve deeper into photography. I am now constantly improving my skills in various photography courses and I enjoy this work more and more. Life has been one big adventure and I would like to thank all the people who have lived with me and supported my activities, whether it be my work as a basketball player, a beekeeper or a photographer! Thank you for being you!

Lyme Disease symptoms: Why some recover fast and others do not

27,972 views Mar 25, 2021 #lyme #viivekairebane #neuroborreliosis

I was diagnosed with Lyme disease in 2012, after getting sick nine months earlier and trying to see what was wrong with me. The road to diagnose was slippery, but I got treated with antibiotics right away after being diagnosed. However, the symptoms prevailed and I went for years feeling the symptoms with no doctor willing to retest or re-treat me for lyme.

After being sent to various doctors so see if I have something else causing the symptoms, I ended up in the hospital in 2020 only to find out I have neuroborreliosis. Why is diagnosing and treating Lyme disease so difficult and why are people not getting the help they need?

I am sharing my personal experience and views on this very complicated disease in hopes to help others who are struggling with the same problems. I am not a doctor, and this video is not intended to give any medical advice, but rather to share my story and bring awareness of Lyme disease.

Why does Lyme hurt so bad – Search

Lyme disease can cause severe pain due to several factors:

  1. Inflammation: The bacteria that cause Lyme disease, Borrelia burgdorferi, can trigger inflammation in various parts of the body, including joints, muscles, and nerves. This inflammation can lead to significant pain and discomfort1.
  2. Neuropathy: Lyme disease can affect the nervous system, leading to neuropathy, which is damage or dysfunction of the nerves. This can result in nerve pain, tingling, and weakness, especially in the hands and feet1.
  3. Arthritis: One of the later stages of Lyme disease can cause Lyme arthritis, which is characterized by severe joint pain and swelling, particularly in the knees and other large joints.
  4. Systemic Impact: Lyme disease can affect multiple systems in the body, including the brain, heart, and muscles, leading to a wide range of symptoms that can contribute to overall pain and discomfort.
  5. Lyme Disease symptoms: Why some recover fast and others do not

Early diagnosis and treatment are crucial for managing Lyme disease and reducing the severity of symptoms. If you suspect you have Lyme disease, it’s important to seek medical attention promptly.

Lyme Disease: Painful, Long-Term Effects

1www.lymedisease.org2www.cdc.govLittle update 4 months after the video- my doctors are thinking I might be suffering from neuroinflammation- a condition brought up by my immune system being over active after years of fighting with lyme bacteria- and that overreaction causes inflammation in the brain.

It makes sense to me as my symptoms come and go really fast, and I can usually track down what triggered them (usually eating anything gluten/dairy/white sugar, not sleeping properly, mental stress or doing too much physical work). 

I don’t react to my symptoms mentally anymore (aka dont freak out or allow it to make me sad/frustrated/angry) and I have realized that if I am feeling the symptoms (extreme fatigue, dizziness, numbness of hands/fingers, brain fog), then instead of just resting and sleeping it off, I go to walk or move, to get my blood running, and that speeds up the recovery and helps me to feel better much quicker.

I avoid things that cause inflammation, and I am feeling quite well right now! Wishing you all the best, don’t give up!!! There are many people who have overcome Lyme and I am sure that it is treatable, you just gotta keep fighting for your health!!! I am right here with you & sending you lots of love!!!

Viive-Kai Rebane – Search

@ViiveKaiRebane

Little update from March 2024! I have found the solution to my chronic Lyme disease through bee venom therapy!

So many people in the Bee 🐝 venom.. therapy group have gotten totally rid of it after trying everything else that didn’t work! We just use regular honeybees that the beekeepers use and sting ourselves 3 times a week. I am not going to go into details, but you find all the information you need for free in the “Healing Lyme with Bee Venom” group on Facebook. Join the group and go under files, and then find the Bee Venom Protocol pdf.

@ViiveKaiRebane

 @seanhunt2365  I need to do some more research on that because it still keeps lingering around when I am not careful, thank you for sharing! I got a lot of help from CatsClaw and also Biocidin LSF, these two made a huge difference for me. Wishing you all the best!!!

I found a possible reason why bee venom can help with chronic Lyme. Chronic Lyme is linked to Mast Cell Activation Syndrome (MCAS). Scientific article on spandidos-publications. Inhibitory effects of bee venom on mast cell-mediated allergic inflammatory responses

If you have any questions you can search in the group, probably your question has been answered already there. Or if you don’t find one, you can always ask in the group as well. My experience has been super good with it so I really recommend reading through the materials and looking into it. Best part is that it is very cheap and you can do it on your own at your own home, so you are not dependent on doctors who don’t believe/know how to help you anyways. Sorry to just throw it out there but just reading about people losing hope- bee venom has brought so many people back to health. 

I did it for 7 months last year and got totally rid of most symptoms and also the food allergies- I can eat gluten and dairy again without relapsing! I thought that some of the symptoms I had were irreversible and that I have to live with them for the rest of my life- long story short they are not and I made almost a full recovery! I am not a doctor and cannot give you medical advice but I can say for myself that bee venom therapy gave me my life back when all that doctors could suggest to me was to start taking antidepressants! I am still continuing the therapy and will make a video about it soon! Until then take care and I am sending you lots of love!

Cat’s claw can help a lot and also try Japanese knotweed. You can do oregano oil and clove. I’m not sure about Black Walnut. I have it but haven’t tried it yet turmeric tablets can keep down the inflammation some great doctors to watch on YouTube: Lyme specialist Dr. Richard Horowitz, – Search Lyme specialist Dr. Marty Ross, – Search and Lyme specialist Doctor Bill Rawl – Search Videos

This explains why my nerves, muscles, bones and skin hurt.

I never knew bone pain was a thing, unless you had surgery, until Lyme and Bartonella.

Teasel is Tremendous Medicine!!! [Quick Herbal Overview]

Note: What works for one person may not always work for everyone else.  That is my point. I think people overstep, sometimes in making announcements that even doctors would not ever consider saying.

Maybe it does work for some people and I’m happy for them.

[PDF]Treatment of Chronic Lyme Arthritis with Hydroxychloroquine – Search

Sandy Crocker

Dr Simon Yu has a great video on YOUTUBE about Lyme and cancer.   https://www.youtube.com/watch?v=pr-prRfV5_8

I heard a friend of mine was getting treated for aggressive breast cancer, and so went straight to her to tell her about the research Dr. Eve Sapi out of University of New Haven – Search is doing between the connection of breast cancer and Lyme (to tell her to consider looking into if she has Lyme). She looked right at me and said “oh, I’ve had Lyme for years”. It flares often and I treat it with antibiotics and then it goes away. 😳

@nwidas1

I’m so sorry 😢you are struggling like this. Thank you for having the courage to share your story . I’m going through it hard right now again but finally got a diagnosis 6 months ago. Had been bedridden past three years, and sick in and out of hospital for the past 10 years. Affected my joints, spine, muscles , bones, brain , heart, liver , and spleen . Walking or sitting is out of the question when this flare up hits. Doctors thought I had fibromyalgia, lupus, and Hashimotos and chronic fatigue .

The brain fog is AWFUL! 😫I thought I was getting better but last week had a hard flare up for 9 days straight with the most insane constant pain. I am feeling WAAAY BETTER today after learning and treating properly. Due to all my bad experiences over a decade with medical doctors, I focused the last 2 years on naturopathic doctors and started using CellCore Biosciences products offers detox and gut health supplements to remove parasites, Lyme, mold toxicity, as Biotoxin’s, use carbon binders etc.

I’ve been on the products for parasites and BABESIA (a coinfection of Lyme that affects heart & red 🩸 cells for 9 months and was feeling better than normal. Then I got Covid and experienced the worst pain of my life for 3 weeks. 2 months later, I had this flare up of bartonella and other coinfections that weren’t initially treated or diagnosed.

I have been working exclusively with highly recommended naturopathic doctors. On Instagram, Dr. Ashley Beckman, Dr. Jess Peatros, and Dr. Allyssa Lascala Aka “Biohacking bombshell”, I know when funds are tight because you haven’t been working since you’ve been sick, working with a naturopathic doctor and paying out of pocket is not always possible. So even if you can’t work with one of these Doctors, please check out their highlights and Instagram page because you will learn so much. 

Dr. Jess MD has a platform setup to empower us to be our own doctor where we get to converse with 4 other doctors and figure out the root cause of any disease and treat it. I’ve learned a lot from Biohacking Bombshell aka Allysa because of all the free information she posts on her highlights . Highly agree with you on supporting your immune system first and sleeping 8-10 hours. In addition to cell core products that are killing and binding the Lyme, coinfections, and parasites 🦠, I found I also needed additional support for my slow mitochondria, inflammation, and immune health . So I started taking adaptogenics like cordyceps, eleuthero root, ashwagandha, lion’s mane , and my energy started getting better and stress went down . I added krill oil day and night with tumeric to help with inflammation.

But☝️ one important thing I just learned is that you have to protect and repair the area you are having symptoms because that is where the most damage occurs. So, for me I need collagen for my joints, alpha lipoic to protect my nerves in body and brain, Japanese’s Knotweed or Resveratrol and ubiquinol for heart health and oxygen to the brain.

Lyme disease kills our mitochondria. It is so just dealing with the toxic load that we end up not having enough oxygen left for our brain. This results in brain fog. Our brain needs at least 25% oxygen but when we have an overflow of the pathogens there just isn’t enough oxygen to go around. I get air hunger too and chest pains because I have BABESIA coinfection as well.

The most comprehensive protocol that has been working for me is cellcore products which you can get either working with a practitioner or ND or you can simply ask them for their code to order, 😊. But I highly recommend starting 6 months guided by a doctor with the products because they are powerful and take care of biofilms, parasites, binders, parasites, restoring ATP and cell energy, and removing inflammation. It uses very potent herbal healing to attack and remove the microbial disease 🦠

Lastly, a helpful tip, look into METHYLENE BLUE  – Search 💙🙏. By Proscriptions because of their exceptional testing and purity and good taste … This troche or lozenge dissolves in your cheek and gum and works straight for your brain 🧠! Restores incredible focused energy and productivity. They advertise it as a brain pharmaceutical but the 4 doctors behind it have a defined interest in Lyme disease and people with chronic fatigue . I’ve used it 3xs and the results are phenomenal!😊 But you will have a blue Smurf tongue 👅 😂.

I don’t mind it. Add red light therapy and infrared saunas to your treatments if possible as they kill the microbes in your body, increase cell health which we definitely NEED, and alleviates pain, numbness, and brain fog. I do red light therapy and methylene blue daily, but I do the sauna weekly cause it sweats your toxins out and opens up your drainage pathways which is VERY IMPORTANT when detoxing from parasites and Lyme.

ALL YOUR DRAINAGE PATHWAYS like colon, lymph, liver, kidneys, MUST STAY OPEN in order to properly allow your body to flush them out. I hope this helps! I am happy to share or help anyone going through this cause it sucks and is prolly the hardest thing we’ll ever have to do. Grateful for this community to share, grow and heal together! 🙏❤

@christianguthrie6614

Fasting helped shift things for me mentally. Keto, C8 oil for ketones, NAC, a pure grain free AIP diet, probiotics, and Quercetin, in fact Inflammatone TM is a good combination products, has curcumin, Quercetin, nattokinase, frankincense resin extract, rosemary extract. It has a good product data sheet explaining the inflammatory pathways it regulates. Good luck, you got this. Great, you made the mental shift towards activity and acceptance. Awesome work.

image.png

Naturally tranquil and serene, I’m compelled to keep going down this beautiful road.

ꜱᴛʏɢɪᴀɴ ꜰʟᴀᴍᴇ  

@xstygianflamex

· ꜱᴛʏɢɪᴀɴ ꜰʟᴀᴍᴇ (@xstygianflamex) / X

Anonymous participant

Edit: Thank you everybody for all of your help. I was very stressed out trying to decide what was best for my next step. I really didn’t want to do the Rifampin or the IM Bicillin shots (couldn’t find anyone to do those anyhow). I messaged my LLMD about switching to herbals and she was agreeable to it. She suggested Japanese knotweed, cryptolepis and /or Houttuynia. I really appreciate you all. 💚🤗

Rifampin…is it worth the risk? I’ve been on every antibiotic, anti-fungal and malaria medication out there and feel like I am running out of options. When the informed consent came over from my LLMD, I got scared and didn’t sign it. Why would the FDA allow a carcinogen in this medication? According to the IC, Rifampin puts me at a higher risk of developing cancer now and in the future. I’m already worried about the impact all of these heavy medications are having on my organs now and in the future and now this. 🥺

@candygarfield1479

Yes! Hard as it may seem to think of GETTING UP instead of going down.. but if you just put on sneakers and walk five minutes at a hard pace, slow down after ten. You’ll find so much has been reduced . You don’t have to THINK to walk, just go. Pay attention to breathing, you may get winded in a minute, not it passes in a few more, when it happens, breath deep diaphragmatic breaths. Breath in 4 seconds, hold 4 breath out 8 hold 4. It’s like each exhale, inflammation goes down. Pain reduces as oxygen gets through to muscles.

@Needless2say

 @nwidas1  Thank you for posting. I gave up on most Drs and have figured out the same things on my own (self studying, pubmed, and good yt drs) I also high dose vitamins and minerals and take other herbs (too long to list) like yourself I will speak to anyone who will listen but often it falls on deaf ears. Have you tried iodine, avoiding plastics, sunlight/wet earth grounding, and fasting methylation(Dr Ben Lynch) Praying and a good mindset and being positive is essential all these have helped me as well. Thank you for spreading the truth. God Bless.

Seraphina le Faye

Lauren Lovejoy yes. Andrographis worked for me but yes it takes a long time. Yet It did no damage. And organisms do not develop resistance to it because the mechanism of action is different.

Jane Payeur BaldwinIf you do not want to go the synthetics (Rx) route, you could try the herbal route. My LLMD used both. 

He published a book on herbs last year. It is by Dr. James Schaller on Amazon. – Search

Peggy Canaris

 Does anyone else suffer from episodes of derealization where familiar surroundings look/feel uncanny, and even threatening, like in a nightmare? How would you describe derealization caused by Lyme?

Lisa Rice- Madjerac

Try EFT emotional freedom technique, search Tapping for lyme, derealization or depersonalization

Nicole Robbins

Yes this happened a lot when I first started treatment and has gotten better in the past 2 1/2yrs for me. I would often tell my LLMD that “I know I’m here but don’t feel like I’m here, feels like something/someone has taken over my body and brain. It’s almost like Deja vu but a weird Deja vu, only way to describe it.

Roxanne Berardi Perkins

Admin

This was talked about in a podcast this week

Lyme Disease Psychiatric and Mental Health Toll Insights from Dr. Robert Bransfield

YOUTUBE.COM

Lyme Disease Psychiatric and Mental Health Toll Insights from Dr. Robert Bransfield

Lisa Rice- Madjerac

Try EFT emotional freedom technique, search Tapping for lyme, derealization or depersonalization

Dkemmd Sond

Peggy Canaris Derealization episodes, where familiar surroundings feel strange or unsettling, can be a symptom of neurological effects from Lyme disease. It’s often described as feeling disconnected from reality, like being in a dream or nightmare, and can be linked to inflammation or nervous system involvement caused by Lyme.

@logicrealitytruth

1 year ago

Have you tried Rife treatments? I use a function generator. It really helps.

@rebane6

I have been on active lyme for years now. And the treatment did not work, so I did it twice. What worked was deciding lyme does not define me, i define lyme. I work with my mental health and my body, eat well and fresh, have my vitamins balanced, and sleep as much as I need. Gluten, milk, sugar and caffeine is mostly out of my diet. I have an active lifestyle, and I move a lot outside. Do only the things that I love. I do saunas and winter swimming for positive stress. Using essential oils do support me both physically and mentally. Having a massage once a month. Being balanced in my body and soul is the only way for me to have control over diseases. I host a party for lyme in my body the way it will be passive and can’t dictate over me. Haven’t had numbness for about 3-4 years for now. 💥️ It’s a great success. 💥

  Hello there @katgsh, There’s a video here on youtube on a channel called The Why Files. It is called The Horrors of Plum Island and it tells the history of when ticks were being researched for biowarfare. Enlightening stuff!

ɪ ɴᴜʀᴛᴜʀᴇ ᴛʜᴇ ᴅᴀʀᴋᴇꜱᴛ ᴘᴀʀᴛꜱ ᴏꜰ ᴍᴇ, ᴛʜᴀᴛ’ꜱ ᴡʜᴇʀᴇ ᴛʜᴇ ᴡɪʟᴅꜰʟᴏᴡᴇʀꜱ ɢʀᴏᴡ…

image.png

Dr. Sapi out of University of New Haven is doing between the connection of breast cancer and lyme – Search

-UNDER OUR SKIN- (Film/ Documentary Exposing the Hidden Epidemic of Lyme Disease)

Bitten: The Secret History of Lyme Disease and Biological Weapons – Search

Lyme Disease Psychiatric and Mental Health Toll Insights from Dr. Robert Bransfield

High cortisol is wreaking havoc on your health. 4 simple steps can lower your levels

Heart rhythm holds the key to treating psychological trauma, suggests study

Lyme Disease and Ticks – Causes, Treatments and More – YouTube

Dr Paul Zalzal   Dr Tom Warren    Dr Tom Weening

“Healing Lyme with Bee Venom” group on Facebook. – Search

9 Warning Signs You Have Lyme Disease (And How to Treat It)

 What your heart rate says about your fitness level

Under Our Skin Documentary – Search

The Lyme Disease Diet

This entry was posted in Uncategorized. Bookmark the permalink.

Leave a Reply

Your email address will not be published. Required fields are marked *

Time limit is exhausted. Please reload the CAPTCHA.